Praise Report!

This is cute!

Things have been going really well. The meals are easy to do with a little planning. For instance, yesterday I took the kids to the pool and when dinnertime rolled around dad brought Lainey's food in a separated plastic container, a cup with her cream and her meds. She did seem hungry still, probably from all the swimming. I just kept offering her cup of water.

We were having trouble getting her KetoCal formula. I know that it is not absolutely necessary to have this, but Lainey really likes it and it has what she needs for her ratio. I even have a snack created in ketocalculator consisting of ketocal formula and some fruit. Our insurance wasn't going to pay for it because she doesn't have a metabolic condition or G tube. The wonderful discharge nurses worked really hard to research other avenues to acquire the formula. Low and behold because Lainey is on Medicaid (a whole other story) we automatically qualify for WIC and they send the formula out for FREE! Otherwise, we would have to pay the $250 each month. I am excited to get the powder and make some of the pancake and muffin recipes from ketocal.com.

She is still having seizures, but we haven't managed to keep her at high ketones yet. Yesterday we increased her ratio to 2.75:1 and it has already raised them. I pray that once we get her ketones to stay at a high level over a long period of time we won't have any seizures. We are already weaning off Topomax, which I am so happy about. It has some bad side effects and she has to take a supplement with it. So that will be two less meds to administer two times a day.

I have also found a few other Web sites that are sooooo neat:

http://www.ketogoods.com/KETO_GOODS/HOME.html ---- super neat shirts and stickers to make your people aware of their diet.

http://ketocook.com/ ---- great ideas, resources and recipes

Our local support group is Keto Kids of Kentuckiana group on Facebook.com

From ketogoods.com